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4. Non-Pharmacological interventions

4.2.1 Parent/Family Training

Parent/family training refers to interventions aiming to help parents to optimise parenting skills to meet the additional parenting needs of children and adolescents with ADHD, through parent training delivered directly to parents (or primary carers). The intervention may target effects of ADHD on the child or may also include effects on the family. Components may include general parenting guidance, as well as ADHD-specific guidance.

Importantly, parent/family training does not imply that parenting skills are in any way deficient, but rather that specific skill development relating to supporting children with ADHD is important.

The evidence-based review below focuses on the outcomes of ADHD symptoms and broader functioning and other symptoms as per the NICE 2018 guideline. A narrative review is included to cover the effects of parent/family training on domains such as parenting and parent mental health. The narrative review involves summarising the parent and family outcomes for the studies included in the evidence review.

Parent/family training versus waitlist/usual care
New evidence was identified from 2 studies (Lange, Daley, et al., 2018; Sonuga-Barke et al., 2018) and integrated into the NICE evidence (4 studies), resulting in 6 studies with low- to moderate-certainty evidence. There were statistically significant benefits of family training over waitlist/usual care for total symptoms, inattention symptoms and hyperactivity ADHD symptoms (parent and clinician-rated) and for other symptoms and conduct symptoms (parent-rated).

No statistically significant differences were found for ADHD total, inattention and hyperactivity symptoms and other symptoms, for conduct symptoms based on teacher report, or for parent-rated and child-rated global impressions of parent-child interactions. Larsen et al. (2021) reported additional analysis from the original study by Lange, Daley, et al. (2018). When using the Child Health Questionnaire, (change from baseline) quality of life of children was not statistically different between parent/family training and waitlist/usual care.

Parent/family training versus parent/family training
New evidence was identified for a new comparison consisting of one RCT, with a low risk of bias and moderate certainty, in preschool children with ADHD. It compared two parent/family training programs: the New Forest Parenting Programme (an ADHD-specific parenting intervention) and the Incredible Years program over 12 weeks.

There were no statistically significant differences for parent- and teacher-rated ADHD symptoms and conduct problems using the Swanson, Nolan, and Pelham (SNAP) Questionnaire, or for conduct problems using Eyberg Child Behaviour Inventory. The cost per family of the New Forest Parenting Programme when calculated in the UK setting was significantly lower than that of Incredible Years (£1591 versus £2103).

Parent/Family training versus waitlist/usual care
New evidence was identified in one study (Daley, Tarver, & Sayal, 2021) and integrated into the NICE evidence (6 studies) resulting in seven studies with very low-certainty to moderate-certainty evidence. In the updated evidence review there were statistically significant benefits of parent/family training over waitlist/usual care for parent-rated ADHD inattention (7 studies included) and hyperactivity (6 studies included). In the original NICE 2018 review there were some statistically significant benefits in parent-reported total ADHD symptoms and broader functioning/behaviour, and teacher-reported inattention.

There were also statistically significant benefits for academic literacy and numeracy outcomes but this outcome was only assessed in one study characterised by high risk of bias (Merrill et al., 2017). No statistically significant benefits were found for most teacher-rated ADHD symptom outcomes, teacher-reported functioning/behaviour, and investigator-rated Clinical Global Impression. NICE 2018 noted that in a follow-up study (low quality), there was a clinically important harm for ADHD hyperactivity symptoms, however, in this small study adolescents with ADHD also reported greater self-reported improvements in functioning/behaviour compared to waitlist/usual care (Sibley et al., 2018).

Parent/family training versus relaxation
No new evidence was found. NICE previously identified one very low-quality study of parent/family training versus relaxation (Horn, Ialongo, Greenberg, Packard, & Smith-Winberry, 1990). There was a benefit for teacher-reported ADHD hyperactivity symptoms, and no benefit for parent-reported ADHD hyperactivity symptoms, parent- and teacher-reported other symptoms, academic literacy and numeracy outcomes.

Parent/family training versus psychoeducation
No new evidence was found. NICE previously identified one moderate quality study of parent/family training versus psychoeducation (Power et al., 2012). There was no benefit for parent- and teacher-rated academic outcomes.

Parent/family training & relaxation versus parent/family training
No new evidence was found. NICE previously identified one very low-quality study (Horne, 1990 noted above) of parent/family training versus relaxation. There was a benefit for teacher-reported ADHD hyperactivity symptoms and other symptoms, and no benefit for parent-reported ADHD hyperactivity symptoms, other symptoms, or academic literacy and numeracy outcomes.

Parent/family training & relaxation versus relaxation
No new evidence was found. NICE previously identified one very low-quality study (Horne, 1990 noted above) of parent/family training and relaxation versus relaxation only. There were benefits in terms of directly assessed numeracy. There were no benefits for teacher- and parent-reported ADHD hyperactivity symptoms, other functioning/behaviour, or directly assessed literacy outcomes.

Parent/family training & Organisation/school based versus waitlist/usual care
No new evidence was found. NICE previously identified two low to moderate quality studies of parent/family training and organisation/school-based intervention versus waitlist control (Evans, Schultz, & DeMars, 2014; Jensen et al., 2007 / Anon, 1999). There were no benefits for parent-rated total ADHD symptoms, parent- and teacher-rated ADHD inattention and hyperactivity symptoms, other symptoms, emotion dysregulation, parent-rated literacy outcomes and numeracy outcomes and teacher-rated academic performance. There was a clinically important harm of ADHD hyperactivity symptoms based on classroom observer report but evidence was very low quality. There was a clinically important harm of ADHD hyperactivity symptoms based on classroom observer report but evidence was very low quality.

Summary of Narrative Review 

Young Children

For young children (under 5), all studies examining parent/family training compared to waitlist/usual care (1 new, 4 from NICE) found benefits for one or more areas of parenting or family functioning measured. For example, all three studies examining self-reported positive parenting behaviours as an outcome (Abikoff et al., 2015; Bor, Sanders, & Markie-Dadds, 2002; Matos, Bauermeister, & Bernal, 2009) reported improvements. Both studies examining self-reported parenting stress as an outcome (Abikoff et al., 2015; Matos et al., 2009) reported benefits, although in Abikoff et al (2015) the benefit was only associated with one of the interventions assessed.

Single studies examined family stress/strain (Lange et al., 2018) and parental conflict (Bor et al., 2002), and these studies reported positive outcomes in these domains for parent/family training interventions.

Benefits were less reliable in terms of observer-rated parenting behaviour across the four studies examining this outcome, with Lange 2018 and Bor et al. (2002) reporting no benefits. Abikoff et al. (2015) found improved observed parent-child interactions for one of the two parenting interventions evaluated. Thompson et al. (2009) examined a number of observer-rated parenting behaviours and largely found no benefits with the exception of improved family expressed emotion (fewer observer-assessed negative comments in a parent speech sample). None of the three studies examining improvements in terms of parent mental health (Bor et al., 2002; Matos et al., 2009; Thompson et al., 2009) reported benefits associated with parent/family training.

Children and Adolescents

For children aged 5–17 years, potential benefits of parent/family training on parent/family functioning domains for the studies included in the evidence-based review above comparing parent/family training to waitlist/usual care were explored. Of the studies comparing parent/family training to waitlist/usual care, 11 included 1 or more outcome measures assessing parent/family functioning (Au et al., 2014; Chacko et al., 2009; Daley & O’Brien, 2013; Daley et al., 2021; Fabiano et al., 2012; Hoath & Sanders, 2002; Merrill et al., 2017; Sibley et al., 2016; Sibley et al., 2013; Van Den Hoofdakker et al., 2007; Webster-Stratton, Reid, & Beauchaine, 2011) and across these studies, at least one parent/family outcome was improved in the parent/family training group relative to waitlist/usual care, except for Merrill et al., 2017 and van den Hoofdakker et al., 2007.

All four studies assessing parenting self-efficacy found benefits associated with parent/family training (Au et al., 2014; Daley et al., 2013; Daley et al., 2020; Hoath et al., 2002). Three studies found evidence of improved positive parenting by observer report (Chacko et al., 2009; Fabiano et al., 2012; Webster-Stratton et al., 2011), while another study did not (Daley et al., 2013). There was some inconsistency in whether parent/family training was associated with parent/family impairment or strain with one study finding benefits (Chacko et al., 2009) and others finding no benefits (Daley et al., 2020; Sibley et al., 2013). Two studies found improvements associated with parent/family training in terms of parenting stress (Chacko et al., 2009; Sibley et al., 2016), whereas two did not (Au et al., 2014; van den Hoofdakker et al., 2007). A single study examining observer-rated expressed emotion (Daley et al., 2020), reported benefits in this domain for parent/family training interventions compared to waitlist/usual care.

Three studies examined outcomes in one or more domains of self-reported parenting (Hoath et al., 2002; Merrill et al, 2007; Webster-Stratton et al., 2011). Hoath et al., 2002 found benefits in one domain (verbosity) but not in other domains such as laxness or overactivity (Hoath et al., 2002), while Merrill et al., 2007 did not report any benefits in self-reported parenting. Webster-Stratton et al., 2011 found benefits in 4 out of 5 self-reported parenting behaviours by maternal report, while fathers did not report benefits in self-reported parenting associated with parent/family training. Two studies found no benefit in terms of parent-reported parent-child relationships (Daley et al., 2020; Sibley et al., 2013). One study found improved adolescent-reported parent-child conflict associated with parent/family training (Sibley et al., 2013), while another did not (Sibley et al., 2016).

None of the studies examining improvements in terms of parent mental health (Chacko et al., 2009; Daley et al., 2013; Daley et al., 2020; Hoath et al., 2012) reported benefits associated with parent/family training. Single studies examined parental conflict (Hoath et al., 2002) and relationships with siblings (Daley et al., 2020) as outcomes, and found no benefits associated with parent/family training.

Evidence to Recommendation Statement 

Young Children

The updated evidence and narrative review supported the recommendation to offer an ADHD-focused group parent-training programme to parents or carers of children under 5 years with ADHD.

The effectiveness of parent/family training varied according to raters (parents, clinicians or teachers), with more benefits evident by parent report. There is limited evidence to suggest improvements in child symptoms and/or functioning by teacher report, which is not surprising given the focus of parent/family training is on the home context. There is also very little available research in the under-5 population on which subgroups of children with ADHD may benefit more or less from parent/family training interventions.

In terms of what areas parent/family training can be helpful for in children under 5, the evidence review suggested improvements associated with parent/family training for ADHD symptoms and other domains based on parent-report. Importantly, the narrative review demonstrates benefits of parent/family training in one or more domains of parent/family functioning for each study examined in the narrative review.

Only one study in the reviewed period compared two different types of parent/family training programs (one ADHD specific and delivered individually at home and the other group-based and not ADHD specific) and found that both interventions were largely similar in benefit (Sonuga-Barke et al., 2018). However, in this study the individual, home-based intervention was considerably cheaper to deliver (Sonuga-Barke et al., 2018). Given the lack of evidence to support the superiority of one type of intervention delivery over another, clinical practice points were provided about how parent/family training should be delivered.

It is therefore recommended that parent/family training should be offered to the families of children younger than 5 years, but without the expectation that it will improve functioning in other settings, such as early childhood education settings. It is important to note that medication is not routinely offered for young children with ADHD under 5. Therefore, parent/family training is the main treatment option for children with ADHD under 5 years.

Children and Adolescents

Consideration of the updated evidence review and the impact of parent/family training on parent and family outcomes resulted in the recommendation of offering parent/family training to parents/carers/families of children and adolescents with ADHD. Recommendations about the duration of training have not been made because no studies were identified that evaluated brief parenting approaches, however, this is an important direction for future research, as noted in Chapter 8. NICE recommended more intensive parent/family support for children with ADHD and co-occurring oppositional defiant disorder or conduct disorder, and the GDG agreed with providing the same recommendation. Very few studies have examined whether parent/family training in the context of ADHD should be provided individually or in groups thus rather than evidence-based recommendations, clinical practice points are provided to guide practice.

The evidence review found the effectiveness of parent/family training varied according to rater (parents, clinicians or teachers). Evidence suggests small-to-moderate improvements in ADHD symptoms and functioning based on parent report, although most studies had high levels of bias. There is limited evidence to suggest improvements by teacher report, which is not surprising given the focus of parent/family training is on the home context. The added narrative review demonstrates that parent/family training is associated with a number of benefits in terms of parent/family functioning. It is noted that there is much variation in the studies included in this section. For example, some interventions specifically focus on single-parent families (Chacko et al., 2009), one focused on a self-help version of parent/family training (Daley et al., 2021), one specifically focused on fathers (Fabiano et al., 2012) and some include multi-component interventions also including children and teachers. Any parent/family training interventions should be specific to the needs of the person with ADHD and their parents/carers/families, be strengths-based, and foster hope and personal empowerment.

Recommendations

Clinical considerations for implementation of the recommendations

Parent and family support may be needed when parents undertake parent/family training, as families may already be under considerable stress (particularly if the child has severe ADHD). Assessment of parental approaches and family structures could create additional stress. When implementing parent/family training, both the positive effects (for example, improvements in symptom severity, child/family functioning, and parent mental health) and any adverse effects should be monitored.

Parent/family training may be accessed through public or private settings, delivered by individual clinicians in individual or group or format. Parent/family training could be accessed through some community organisations (often delivered in a group format) but may not be ADHD-focused. People living in regional/rural/remote areas may have limited access to clinicians or may need to spend more time travelling to appointments. Some parents may prefer individual training over group-based training. Telehealth and online programs are also becoming more available. Workforce development may ensure that health inequity impacts are minimised.

These recommendations should be adjusted for application in Aboriginal and Torres Strait Islander communities. Adjustments could include, but are not limited to, funding training of Aboriginal and Torres Strait Islander allied health professionals, and the incorporation of Aboriginal and Torres Strait Islander cultural practices (see section 6.2). Additionally, the acceptability and feasibility of these recommendations needs to be investigated for culturally and linguistically diverse populations.

Next 4.2.2 Cognitive-behavioural interventions